The dark cloud had finally immersed our house this morning! I feel
I should be playing some dum dum dahhh music in the background. This year
there was no new bag, no new shoes, no new pencil case or pens. In fact
the blazer became such a contentious issue; well quite frankly I just threw my
arms up in the air and accepted defeat! Well not completely! Like most mums and
most mums with children on the spectrum I try to be two steps sorry two feet
ahead. I cope by having backups, backups that nobody else knows about,
those secret little draws or hidey holes stacked with contingencies and a mind
of solutions and resources. It fits in with my strategy and allows me
that indulgence of taking things up to the wire - Meltdown Management! I
laugh and tell people I live by the seat of my pants, which is partly true my
time keeping is atrocious unless we have Mr and Master AUTYnary with me (where
to start with that one it is a post in its self!). I rebel you see, not often
it’s just the teenager in me!
So there I am early this morning washing
out pencil shavings out of the bottom of old case, decantering last terms books
from rucksack and frantically polishing up a well worn pair of school shoes in
silence. Re-pressed the trousers, shirt and tie - check. Clothes in
the right order - check. Shoes at the bottom of stairs - check.
Blazer no more said about that - check. OK let's go.
I'm mindful about our 'Bob's anxiety, even
more so this year because he has been so vocal in expressing it! His
school have been really good supporting him. They have spent lots of time
talking about social and emotional issues, helping him develop his own
strategies to manage these aspects of his life in particular whilst at school
and delving into the world of social interaction from which he will recoil.
So I was confident if I made the call and spoke to the Learning Support
team, between us we could set about lessening the impact with some discussion
and reinforcing positive messages of support. Call - check.
So engrossed with the uniform debacle,
forgot all about the fact that 'Bob' had missed the last two days of the summer
term because he had an emergency visit to hospital. Now was this a factor
in the anxiety? I mean we didn't fully complete the school term, didn't get to
say those goodbyes and the reminders that come with closure of an academic
year. SIX WEEKS ON? Surely not. I know my boy can hold onto
'botherings' but this one is going to be a record. The ability to be
consumed by irritations, and produced hours and days later is a key skill he
developed quite early on. One in which I usually see coming!
Patterns of behaviour don't generally change plus I know my son! School,
being fantastic again, have suggested they get his TA to have a chat with him
and will try to discuss how going to hospital made him feel. I thought
"Good Luck!" That old chestnut had been and gone, but there was the
off chance he may share the experience! What they're likely to get is a
grunt!
I try not to bellow up the stairs but for
a split second I forget.
"C'mon lazy bones up you get,
It's school time!" .....Ooops
There's clonking and banging, and
shuffling of feet, then bang, bang, thud, bang, thud....he presents himself
with a blanket wrapped round his head.
"Where's me breakfast?" I point
in the direction of a breakfast bowl, glass of orange juice and medication
carefully placed in a line. So things just never change and the order in
which we receive our breakfast is one, the order in which we put our clothes on
and the order in which we scrub up in the bathroom are the others.
Reassuringly I let 'Bob' know about my
conversation with school, to which I get a grunt! I pass on the information
about where he goes, what time and how the timetable will look today, I get a
grunt! We manage to not pace the hall but I can see the anxiety is taking
its toll, and what he really wants me to do is to get in the car and arrive
half an hour before he needs to be.
We don't talk on the drive there. I
pull up and 'Bob' grabs his bag, gets out and disappears in the sea of bobbing
heads. His anxiety may have lifted slightly but mine has just increased.
And did he have a good day...no idea he doesn't want to talk about I just get a grunt!
I think ur blog is awesome. The patience you must need is amazing, and I think you deserve a medal and the opportunity to have the odd meltdown! Keep blogging, look forward to the next instalment. Ju xx
ReplyDeleteThank you for your lovely comment. Sometimes you forget about patience it just happens and I think letting yourself have the odd meltdown is no bad thing. In fact I think it is essential for self preservation. xx
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