Strange analogy comparing a Weather Station and Autism but it is
amazing what you think about when normal routine has been broken. Our
'Bob' had requested a super duper wireless Weather Station for Christmas and
the indoor unit has been placed on draws behind the sofa. So you can
imagine whilst we have had such dreadful wind and rain we have all been
obsessed with checking the data. Our 'Bob' has been using it in
conjunction with his real time flight simulator, Mr Autynary concerned
that the gusts won't take out the new roof, and
I who whilst in a seasonal reflective mood drew my attention to the data
titles and found myself making those comparisons with ASD.
The constant is the date and time; that's
Autism. It will always be there! But like time management we
strategize and plan to manage autism so it doesn't control us. And when
you lose the momentum of time management/autism you can feel tired, out of control,
confused and nothing makes sense. The balls have to drop sometime like
the qurkism that is a leap
year! We make reasonable adjustments in our lives.
Inside data reflects humidity and
temperature, these are variable but can be controlled. As is the
core of an autistic persons temperament and judgement not everyone is the same,
and with many environmental changes can impact mood, tolerance and sensitivity.
Outside data, again reflects humidity and temperature, variable
association but this one we certainly don't have any control over at all.
I realised (I do that
quite a lot! Epiphanies happen to me all the time I'm surprised they don't put
me in a darken room! ) that this
is another stark realisation of
the world. We can't control the World, it's perception and the people in it. We can influence but that's not enough. It may be my world is so consumed with all things autistic that you
could present me with a baked bean can and I could find something autism related
with it.
And there is this beautiful visualisation of the outside
world; big sun; clouds; rain; snow. Something which would have had
vibrant colours on our
'Bob's visual timetable. The view into the vast entity that is The World!
Here comes the Pressure! Now don't get me
started on this one. We all experience this cooking pot. I am
amazed though how our 'Bob' can keep his rattling up on high for such long
periods. It does worry me that holding on to such stress will have on his
physical being never mind his mental state. There is a Star Trek quote
"I canna hold her much
longer Captain she's gonna blow!" **think Hollywood
Scottish accent** And I have this nightmare I will find him
collapsed somewhere.
By the time I've got to the bottom of the
screen I'm exhausted which fits in nicely with wind speed and rainfall.
Life can be an absolute wash, or an almighty tornado hellbent on wrecking
a path through your life, or it can be limpid, serene and tolerant.
We accept the information from the Weather
Station as given, it's part of nature. Yes, we moan about it but all told
we do venture into the darkest of storms, sunniest of days and no harm comes to
us (Wellies and Sunscreen are required). Brave individuals will chase the
storms and incredible Explorers venturer to the coldest parts of the world with
some uncertainty and risk but they still go there. Governments invest in
the Weather it brings so much to this world; Research and Development,
Environmental rescue and support. Why can't the world just accept Autism as a
given it's part of nature, it's part of our 'Bob' and so many other Children
& Adults on the spectrum. Why then can't the Government invest more in our
'part of nature'? Why can't the world just
accept Autism is not going
anywhere and work with us not against us! Our 'Bob' is an ASSET and he IS worthy of investment too!
A great comparison and a great post
ReplyDeleteThanks Wendy :-)
Delete